Wednesday March 24th, 13:00 CET (Paris, Berlin, Madrid time)
Sjögren's Syndrome Clinical Trials: an update
with Professor Hendrika Bootsma, Head of department Rheumatology and Clinical Immunology, University Medical Center Groningen, the Netherlands
Sjögren Europe is delighted to invite you to our next webinar about clinical trials on Sjögren's Syndrome on Wednesday March 24th at 13:00 CET (Paris time).
The objective of this webinar is to provide accurate and up-to-date information about research on Sjögren's Syndrome.
If you would like to join, please, sign up here: https://zoom.us/webinar/register/WN_s9rkDq6cSIWIaurnAio6Ag
This webinar will be available on replay on our website in April.
Visit our social media pages to keep updated (see below)!
Your team, Sjögren Europe Board
This webinar has been organized with the help of unrestricted grants from SERVIER and NORGINE.
Sjögren Europe strictly follows the EFPIA code.
Sjögren Europe and the content of the webinar are totally independent from these companies.
Wednesday March 3rd, 19:00 CET
Vaccination Webinar
Prof Ori Elkayam, Head, Rheumatology Department, Tel Aviv medical centre, gave an overview of vaccination for patients with rheumatic diseases and an update on what is known so far about COVID 19 vaccines.
You can download the slides of the presentation here.
The aim of this webinar was to provide accurate, quality and up-to-date information to enhance understanding of this hot topic and help you make informed decisions.
Sjögren Europe doesn't tell you whether or not to be vaccinated - this decision is up to you with the personal advice of your medical doctor.
Your team, Sjögren Europe Board
This webinar has been organized with the help of unrestricted grants from SERVIER and NORGINE.
Sjögren Europe strictly follows the EFPIA code.
Sjögren Europe and the content of the webinar are totally independent from these companies.
"Sjögren's Now"
Our Webinar of November 3rd 2020 is now available on replay!
You can watch the webinar on replay just below or on our YouTube channel!
You can download the invitation and program pdf file here
Follow us on Facebook, Twitter and Instagram too or subsribe to our Newsletter (below) to keep up to date about us and our activities!
This webinar has been organized with the help of unrestricted grants from SERVIER and NORGINE. Sjögren Europe strictly follows the EFPIA code. Sjögren Europe and the content of the webinar are totally independent from these companies.
September, 13th 2020 General Assembly
The General Assembly was originally planned in Athens during our 1st patient conference. Due to the Covid-19 situation, the conference has been postponed and this Assembly was organized virtually with Zoom. The General Assembly is for Members to discuss the organization and its activities. This meeting was open to observers. You can find below the draft of the Minutes of this meeting.
July, 23rd 2020 World Sjögren's Day
Have a look at our campaign about the invisibility and the burden of Sjögren's on our specific webpage. Sjögren's is a multifaceted and polymorphous disease. It's a real burden. To live with Sjögren's is a journey: we all have our own path and have to walk it by ourselves; but we are not alone. Keep going, at your own pace. If you can, connect to yourself and connect to others in a meaningful way. We want to acknowledge the difficulties of the disease while having a constructive attitude.
"We are like islands in the sea, separate on the surface but connected in the deep"
William James
June, 14th 2019, EULAR congress Madrid
Read a summary of our presentation at EULAR:
Oral presentation - PARE abstract session 1
General Assembly
First General Assembly of Sjögren Europe with members representing Portugal, United Kingdom, Finland, Netherlands, France, Switzerland, Spain and Greece. Some members of the Medical Board were also present, such as Prof. Chiara Baldini, Prof. Hendrika Bootsma, Prof. Wan-Fai Ng and Dr Juan Ovalles.
The president of the Sjögren's Syndrome Foundation, Steven Taylor, was keen to participate in this historical event, which we hope will be a milestone of a new era for Sjögren patients in Europe and worldwide.