Tips for living with Sjögren
Download the leaflet here in PDF format
Tips for living with Sjögren Read More »
Epidemiology of Sjögren’s: A Systematic Literature Review
Primary Sjögren’s is a multi-system autoimmune disease affecting patients’ physical, mental, and emotional wellbeing. The epidemiology of Sjögren’s is not well understood, and up-to-date epidemiological evidence is needed to improve knowledge and awareness of Sjögren’s among patients and healthcare professionals, and to ascertain the global burden of disease. The objective of this research was to
Epidemiology of Sjögren’s: A Systematic Literature Review Read More »
World Sjögren’s Day 2023
world sjögren’s day july 23, 2023 Τhis year, our campaign was about unmet needs and we encouraged patients, their families and friends to come together and make themselves heard. Dedicate themselves to educating others and help increase the much-needed understanding of Sjögren’s disease by sharing our posts in social media publication. Sjögren’s is a systemic,
World Sjögren’s Day 2023 Read More »
Webinar 3: Leveraging the Voice of Patients
The third webinar of the Sjögren Europe Capability Building Program held virtually on April 19, 17:30 – 19:00 CET, focus on “Leveraging the Voice of Patients: How can patients appropriately interact with industry, regulators, and payers?” The webinar included: Overview of how policy decision affect us and easy ways of getting involved. Overview of how medical
Webinar 3: Leveraging the Voice of Patients Read More »
Webinar 2: Creating an annual activity plan
The second webinar of the Sjögren Europe Capability Building Program held virtually on March 13, 17:30 – 19:00 CET, focus on “Zooming out from the day-to-day: Creating an annual activity plan.” The webinar included: Creating an activity plan by setting intentions for the organization Prioritizing activities against vision/mission Building, using, and scheduling an annual plan Understanding
Webinar 2: Creating an annual activity plan Read More »