Financial Report 2019
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Webinar 1: Communications
Dear members, We are pleased to announce that the first webinar as part of the Sjogren’s Capabilities Building Program Webinar 1 leave behinds was a success! We thank all members who were able to attend as your lively engagement was greatly appreciated. For those who were unable to join us, the Webinar featured guest expert
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Lack of understanding – 2020
Click on the flags to watch the video (in Dutch) with corresponding subtitles: This video about the lack of understanding, that probably all patients face on a regular basis, was made by the Dutch Sjögren’s Patients Association in 2020. Thanks to them for giving us the permission to make subtitles for the wider Sjögren’s Patients
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Targeting Chronic Fatigue in Sjögren’s Syndrome
by Prof. dr. Rinie Geenen On the actual World Sjögren’s day, we share this self-help booklet on targeting chronic fatigue in Sjögren’s Syndrome by Prof. dr. Rinie Geenen, who is a psychologist at Utrecht University, the Netherlands. He was involved in the development of treatment programs and international guidelines for the treatment of fatigue and
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What is Sjögren’s? / How is Sjögren’s diagnosed and treated?
Sjögren’s is characterized by dry eyes (xerophtalmia) and dry mouth (xerostomia). Dry eyes and dry mouth are disabling symptoms that have a strong impact on the quality of life. However, Sjögren’s is so much more than dry eyes and dry mouth: it can affect the whole body. New to Sjögren’s? Want to know the basic
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Sjögren’s: The european patients’ community perspective
Editorial in clinical and experimental rheumatology journal Want a more in-depth look at Sjögren’s from a patient perspective? Check our editorial about Sjögren’s patients unmet needs: “The European patients’ community perspective” in the Fourth Annual Supplement on Sjögren’s syndrome of the “Clinical and Experimental Rheumatology” journal (2021)! The European patients’ community perspective Download the paper
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Talk About Sjögren’s – Fall 2020
Click on the flags to watch the video (in Dutch) with corresponding subtitles: Topics: covid-19, testimonies, research, Sjögren Europe, fatigue, vaginal dryness and sexual dysfunction. This video was made by the Dutch Sjögren’s Patients Association in Fall 2020. Thanks to them for giving us the permission to make subtitles for the wider Sjögren’s Patients community!
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Awareness Month 2022
April 2022 For Sjögren’s Awareness Month 2022, Sjögren Europe presents its members, the national patient organisations representing people with Sjögren’s. Their work for patients and to raise awareness about this disease is precious and deserves more visibility. We asked them to make a short video to tell us about their activities, challenges and hopes.
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