live webinar with Maarten de Wit Advisor for participation in research and integration of patient perspective in healthcare, Chair EULAR study group for Collaborative Research, the Netherlands Wednesday May 26th 2021, 18:00 CET (Paris, Berlin, Madrid time) You can watch the webinar on replay just below or on our YouTube channel! In this webinar, Maarten […]
Why and how getting involved in Sjögren research? Read More »
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Switzerland – Association Romande du Syndrome de Sjögren Read More »
April 2021 Sjögren Awareness Month aims to raise awareness on Sjögren’s. During this month we publish different contents on our social media channels.
Sjögren Awareness Month 2021 Read More »
Sjögren Europe won the first prize at the Best Practice Fair Award at the EULAR PARE Virtual Conference 2021 for this campaign among more than 25 other different projects. Click on the picture below to downlaod and read the poster we presented at the conference:
World Sjögren’s Day 2021: A 3-axis campaign about fatigue Read More »
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Greece – Hellenic League Against Rheumatism Read More »
Live webinar with Prof Hendrika Bootsma Head of department Rheumatology and Clinical Immunology, University Medical Center Groningen, the Netherlands The objective of this webinar is to provide accurate and up-to-date information about research on Sjögren’s Syndrome. You can watch the webinar on replay just below or on our YouTube channel! This webinar has been organized
Sjögren’s Clinical Trials: An update Read More »
Fatigue is one of the most prevalent and disabling patient reported symptom of Sjögren’s. Fatigue in Sjögren’s clearly differs from ordinary tiredness. We describe it as an ever-present, fluctuating, and nonrelievable lack of vitality being beyond one’s own control. Not everyone experiences it in the same way, but fatigue is undeniably a permanent part of
Sjögren Europe Campaign for World Sjögren’s Day 2021 is about Fatigue Read More »
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Netherlands – Nationale Vereniging Sjögrenpatiënten Read More »
live webinar with Prof Ori Elkayam Head, Rheumatology Department, Tel Aviv medical centre, gave an overview of vaccination for patients with rheumatic diseases and an update on what is known so far about COVID 19 vaccines. Wednesday March 3rd 2021, 19:00 CET You can download the slides of the presentation here. The aim of this
Vaccination by people with Auto-immune Rheumatic Diseases Read More »
