April 2022
For Sjögren’s Awareness Month 2022, Sjögren Europe presents its members, the national patient organisations representing people with Sjögren’s. Their work for patients and to raise awareness about this disease is precious and deserves more visibility. We asked them to make a short video to tell us about their activities, challenges and hopes. We also prepared a quiz on Sjögren’s to test our knowledge about this disease. The videos and quiz questions will be published throughout April: you will find them on this page and on social media. Follow the campaign on Facebook, Twitter and Instagram!
What is the latest news about Sjögren’s with a special highlight on the european project NeceSSity
Live webinar for Sjögren’s awareness month with Prof Xavier Mariette
MD, PhD Head of Rheumatology Bicetre Hospital, Paris-Sud University, Paris, France
Thursday, April 28, 2022, at 18:30 CEST
Sjögren Europe (SE) was very happy to organise a webinar for Sjögren’s Awareness Month with Prof Mariette about the latest news about Sjögren’s and the European project NeceSSity on Thursday, April 28, 2022, at 18:30 CEST. The NECESSITY Project aims to identify and validate new clinical end-points for primary Sjögren’s with the ambition to provide tailored outcome measures for use in future clinical trials as well to discover and validate discriminative biomarkers for stratification of primary Sjögren’s patients. You can download the slides of the presentation here and watch the webinar on replay just below or on our YouTube channel.
Our members introduce themselves
This information will also be uploaded and be available on our “members” section.