Αn interactive, patient-focused webinar that will shed light on what clinical trials really mean for people living with Sjögren’s Disease. No slides – just open discussion!
Everything You Always Wanted to Know About ClinicalTrials But Were Afraid to Ask Read More »
All the recommendations agree that patients with RMDs should engage in regular physical activity. But how do you find the motivation when you are already tired or in pain? What role does physical activity play in disease management and what benefits can you expect? Suzanne Arends, PhD, Assistant Professor/Clinical Epidemiologist explains why it matters. https://www.youtube.com/watch?v=59lkGwKf7VM
Physical activity in Sjögren’s disease why it is so important Read More »
Many in our community face significant mental health challenges that often go unrecognized and untreated. This webinar aims to create a safe space for sharing experiences and normalizing the conversation around mental and emotional health. Dr. Al Freedman, a psychologist and rare disease dad, and our very own Coralie Bouillot and Ana Vieira, will engage
Breaking the Silence: Addressing Mental Health in the Sjögren’s Community Read More »
A special webinar titled “Highlights of ISSjD Symposium and EULAR 2024 Congress” took place on September 4 2024, at 18:00 CET with keynote speaker Dr. Matilde Bandeira, a leading expert in Sjögren’s Disease, presenting the most important highlights from both the **ISSjD 2024** and **EULAR 2024** conferences, and focusing on the latest developments in Sjögren’s
Highlights of ISSjD Symposium and EULAR 2024 Congress Read More »
The webinar Video in 5 languages English Finnish French Greek Romanian Portuguese Spanish (English, Finnish, French, Greek, Romanian, Portuguese and Spanish) is available οn our YouTube Channel.
Dysautonomia and Sjögren Read More »
live webinar for sjögen’s awareness month with Prof Xavier Mariette MD, PhD Head of Rheumatology Bicetre Hospital, Paris-Sud University, Paris, France Thursday, April 28, 2022, at 18:30 CEST Sjögren Europe (SE) was very happy to organise a webinar for Sjögren’s Awareness Month with Prof Mariette about the latest news about Sjögren’s and the European project
Fatigue in RMDs – World Sjögren Day 2021 and latest expert insights 21 March 2022, 15:00 CET Linda Stone, Secretary and Board Member of Sjögren Europe, introduced our campaign on the important topic of fatigue launched by Sjögren Europe for World Sjögren`s Day 2021. At the virtual 2021 EULAR PARE Conference this project was chosen
EULAR Pare best practice webinar Read More »
live webinar with Dr Henk Brand Medical Biologist and Associate Professor at the Academic Centre of Dentistry Amsterdam (ACTA), the Netherlands Wednesday January 19, 2022, 16:00 CET The management of dry mouth is essential for patients with Sjögren’s. The symptomatic treatment has included using air humidifiers, rinsing the mouth with water or mouthwash, the application
Dry mouth and saliva in Sjögren’s Read More »
live webinar with Prof Wan-Fai Ng Professor of Rheumatology, Newcastle University Honorary Consultant Rheumatologist, Newcastle Hospitals NHS Foundation Trust Deputy Director, NIHR Newcastle Clinical Research Facility (CRF) Academic Lead, NIHR Bioresource Centre in Primary Sjögren’s Syndrome (pSS) Member of the Medical Board of Sjögren Europe and Trustee of the British Sjögren’s Syndrome Association Monday June
Fatigue in Sjögren’s Read More »
