WSD

On July 23, 2024, the Sjögren Europe Federation proudly celebrated World Sjögren’s Day, a vital occasion dedicated to raising awareness about Sjögren’s and addressing the significant unmet needs faced by individuals living with this chronic disease. The theme for this year’s World Sjögren’s Day, “Together We Are Stronger,” underscored the importance of community and collaboration […]

world sjögren’s day july 23, 2023 Τhis year, our campaign was about unmet needs and we encouraged patients, their families and friends to come together and make themselves heard. Dedicate themselves to educating others and help increase the much-needed understanding of Sjögren’s disease by sharing our posts in social media publication. Sjögren’s is a systemic,

world sjögren’s day july 23, 2022 World Sjögren’s Day is on July 23rd. This year, our campaign will be about dry eyes, especially as July is also Dry Eyes Month. Although Sjögren’s is a systemic disease that goes far beyond dryness, dryness remains a frequent, significant and disabling symptom.    

going beyond hydration for dry eye in sjögren’s; a complete perspective To initiate World Sjögren’s Day 2022 campaign, we organised a webinar about dry eyes! This webinar was held on Tuesday July 5th 2022 with Dr Ankur Barua, ophtalmologist, in association with the BSSA. You can watch this webinar on replay just below (this webinar will

  with Dr Ankur Barua, ophtalmologist 1. Dry eye is a multifactorial disease There is often not just “one type” of dry eye; and not all those with Sjögren’s have the same level or form of dry eye   2. Dry eye in Sjögren’s is not fully understood There is still a lot to learn

Here we share with you some patients’ perspectives about Sjögren’s and dry eye where they explain how it is a challenge for them and how it impacts their life. Sjögren’s is often characterized by dry eyes (xerophtalmia) and dry mouth (xerostomia). Dry eyes and dry mouth are disabling symptoms that have a strong impact on

july 23, 2021    

Sjögren Europe won the first prize at the Best Practice Fair Award at the EULAR PARE Virtual Conference 2021 for this campaign among more than 25 other different projects. Click on the picture below to downlaod and read the poster we presented at the conference:

Fatigue is one of the most prevalent and disabling patient reported symptom of Sjögren’s. Fatigue in Sjögren’s clearly differs from ordinary tiredness. We describe it as an ever-present, fluctuating, and nonrelievable lack of vitality being beyond one’s own control. Not everyone experiences it in the same way, but fatigue is undeniably a permanent part of