sjögren's

Sjögren's is characterized by dry eyes (xerophtalmia) and dry mouth (xerostomia). Dry eyes and dry mouth are disabling symptoms that have a strong impact on the quality of life. However, Sjögren's is so much more than dry eyes and dry mouth: it can affect the whole body.

e-leaflets

New to Sjögren's? Want to know the basic information about this illness? These e-leaflets are for you! Click on the pictures below to read the e-leaflets:

These e-leaflets have been realised and published in 2021

These e-leaflets have been realised with the help of unrestricted grants from SERVIER, NOVARTIS and NORGINE. Sjögren Europe strictly follows the EFPIA code. Sjögren Europe and the content of the e-leaflets are totally independent from these companies.

 

sjögren’s: the european patients’ community perspective

editorial in clinical and experimental rheumatology journal

Want a more in-depth look at Sjögren's from a patient perspective? Check our editorial about Sjögren's patients unmet needs: "the European patients’ community perspective" in the Fourth Annual Supplement on Sjögren’s syndrome of the "Clinical and Experimental Rheumatology" journal (2021)!

You can download the paper in pdf here too!

 

 informative videos

lack of understanding - 2020

Click on the flags to watch the video (in Dutch) with corresponding subtitles:

This video about the lack of understanding, that probably all patients face on a regular basis, was made by the Dutch Sjögren's Patients Association in 2020. Thanks to them for giving us the permission to make subtitles for the wider Sjögren's Patients community!

The translations and subtitling of this video have been realised with the help of unrestricted grants from NORGINE, NOVARTIS and SERVIER. Sjögren Europe strictly follows the EFPIA code. Sjögren Europe and the content of these videos are totally independent from these companies.

 

talk about sjögren's - fall 2020

Click on the flags to watch the video (in Dutch) with corresponding subtitles:

Topics: covid-19, testimonies, research, Sjögren Europe, fatigue, vaginal dryness and sexual dysfunction.

This video was made by the Dutch Sjögren's Patients Association in Fall 2020. Thanks to them for giving us the permission to make subtitles for the wider Sjögren's Patients community!

The translations and subtitling of this video have been realised with the help of unrestricted grants from NORGINE, NOVARTIS and SERVIER. Sjögren Europe strictly follows the EFPIA code. Sjögren Europe and the content of these videos are totally independent from these companies.