Fatigue is one of the most prevalent and disabling patient reported symptom of Sjögren’s. Fatigue in Sjögren’s clearly differs from ordinary tiredness. We describe it as an ever-present, fluctuating, and nonrelievable lack of vitality being beyond one’s own control. Not everyone experiences it in the same way, but fatigue is undeniably a permanent part of patients’ lives. It is a debilitating symptom which is associated with reduced health-related quality of life.
Because we want to contribute to increase awareness and acknowledgment of fatigue as a major factor in Sjögren’s and promote a growing knowledge that Sjögren’s is a systemic disease, we present and share with you various activities and informative material related to fatigue in anticipation of World Sjögren’s Day 2021. With this we hope to bring forth a topic often misinterpreted and so poorly addressed.
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You can read our press release here.
World Sjögren’s Day is meant to raise awareness about this disease. Read the interview with Linda Stone, Sjögren Europe Secretary, in Karger’s “The Waiting Room”, which she conducted for that purpose! Listen also to the podcast “All Eyes On: Sjögren’s syndrome” made by Santen with Prof Figueiredo, consultant ophtalmologist, in which Alice Grosjean, Sjögren Europe president, participated to bring the patient perspective on Sjögren’s, dry eyes and World Sjögren’s Day!